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Pediatric Clinical Research Network SIG

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Annual Report

Co-Chairs: Alexander Fiks, MD, MSCE, Children's Hospital of Philadelphia and Richard Ruddy, MD, Cincinnati Children's Hospital

SIG purpose/mission: The mission of the Pediatric Clinical Research Networks SIG is to foster the development and enhance the operations of collaborative inter-institutional research networks intended to improve child health.

Current SIG goals: To hold a highly productive and informative SIG meeting each year at the Pediatric Academic Societies meetings.

Annual summary:The pediatric clinical research networks (PCRN) SIG met in Toronto at PAS on Tuesday, May 8th, 2018 from 9:30-12:30. Approximately 20 individuals representing a diverse group of pediatric clinical research networks and areas of interest attended the three-hour session. After introductions, the SIG conducted two new pediatric clinical research network consultations. The first was:

Dr. Alex Kemper of Nationwide Children’s hospital will present details of a new network, the Nationwide Children’s Hospital Population-Level Action Network. This is a network including the core- General Pediatric Section of Ohio State and Nationwide Children’s Hospital and spokes - multiple spokes of local and regional pediatric clinics and practices all related to the Medical Center.

In addition, Dr. Chris Stille of Children's Hospital Colorado will present the vision and opportunities for the new Children and Youth with Special Healthcare Needs Research Network. This is a newly funded HRSA / MCHB network centered at Children’s Hospital of Colorado with partnerships around the country and looking for put together research in this arena. Lively discussions followed both presentations, as presenters received insights and advice from the group directed at helping their networks flourish. The meeting also featured a presentation from Dr Lynne Haverkos of NICHD who shared the funder’s perspective on PCRN research. The SIG session concluded with a group discussion of network opportunities and challenges from all who were present.

April 2017 Newsletter Article

The Pediatric Clinical Research Networks Special Interest Group (PCRN SIG) will be meeting at PAS from 8:30 – 11:30 on Saturday morning, May 6th in the Marriott Marquis, Sierra Suite I.

The PCRN SIG is a forum for PAS members who either are involved in or are planning to establish clinical research networks (defined as enduring multi-site clinical research collaborations). Representatives of a diverse group of primary care (PBRNs), specialist, and disease-specific networks meet to discuss common challenges and potential solutions to those challenges, offer consultation to those planning or launching new networks, and hear other news on topics of interest to network researchers.

This meeting will feature presentations on two new networks. Drs Christine Turley of the University of South Carolina, Robert Annett of the University of Mississippi and Paul Darden of the University of Oklahoma will present on the IDeA States Pediatric Clinical Trials Network (ISPCTN) network . Dr Christina Olson of Children's Hospital Colorado will present on the Standardized Pediatric Research on Outcomes and Utilization of TeleHealth (SPROUT) network. After each presentation, attendees will offer consultation to the presenters on starting and building research networks.
In addition, we will have sessions on:

Using a single IRB for multi-centered trials:

Rachel Sak, RN, MPH, Elena Hoskin, MPH CCRA and Nate Buscher will present UCSF’s Biomedical Research Acceleration, Integration, and Development (BRIAD) program
They will be joined by John Finkelstein, MD of Boston Children’s Hospital in a discussion about implementing this new rule.

Internetwork collaborations featuring :

Karen Wilson, MD of Pediatric Research in Inpatient Settings (PRIS)
Iman Shariff, MD of Continuity Research Network (CORNET)
Richard Ruddy, MD of Pediatric Emergency Care Applied Research Network (PECARN)
Alex Fiks, MD of Pediatric Research in Office setting (PROS) and Pediatric Research Consortium (PeRC)
C. Jason Wang, MD, PhD of PCHA-UHA Primary Care Physician Network

We look forward to seeing network researchers from both new and experienced networks on the morning of May 6th. We will send an APA Listserv reminder in mid-late April.

Alex Fiks, MD and Richard Ruddy, MD
PCRN SIG Co-Chairs

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