Pediatric Clinical Research Network SIG
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Annual Report
Co-Chairs: Alexander Fiks, MD, MSCE, Children's Hospital of Philadelphia and Richard Ruddy, MD, Cincinnati Children's Hospital
SIG purpose/mission: The mission of the Pediatric Clinical Research Networks SIG is to foster the development and enhance the operations of collaborative inter-institutional research networks intended to improve child health.
Current SIG goals: To hold a highly productive and informative SIG meeting each year at the Pediatric Academic Societies meetings.
Annual summary: The pediatric clinical research networks (PCRN) SIG met in San Francisco at PAS on Saturday, May 6, 2017 from 8:30-11:30 am. Approximately 40 individuals representing a wide diversity of pediatric clinical research networks and areas of interest attended the three-hour session.
After introductions, the SIG conducted two new pediatric clinical research network consultations. The first was IDeA States Pediatric Clinical Trials Network (ISPCTN), a network focused on conducting trials in rural settings. Christine Turley, MD of the University of South Carolina, Robert Annett, PhD of the University of Mississippi and Paul Darden, MD of the University of Oklahoma presented. The second was the Standardized Pediatric Research on Outcomes and Utilization of TeleHealth (SPROUT) network, a group focused on investigating telehealth. Christina Olson, MD of Children's Hospital Colorado presented on behalf of SPROUT. Lively discussions followed both presentations, as presenters received insights and advice from the group directed at helping their networks flourish.
The meeting also featured an IRB focused session. Rachel Sak, RN, MPH and Nate Buscher of UCSF's Biomedical Research Acceleration, Integration, and Development (BRIAD) program presented their group's work, its approach to the use of a single IRB and led a discussion about the new NIH rules regarding the use of a single IRB for multi-centered trials.
The SIG session concluded with a session on internetwork collaborations. This panel discussion included Karen Wilson, MD of Pediatric Research in Inpatient Settings (PRIS), Iman Shariff, MD of the Continuity Research Network (CORNET), Richard Ruddy, MD of Pediatric Emergency Care Applied Research Network (PECARN), Alexander Fiks, MD of Pediatric Research in Office setting (PROS) and CHOP's Pediatric Research Consortium (PeRC) and C. Jason Wang, MD, PhD of PCHA-UHA (Stanford) Primary Care Physician Network.
The Pediatric Clinical Research Networks Special Interest Group (PCRN SIG) will be meeting at PAS from 8:30 – 11:30 on Saturday morning, May 6th in the Marriott Marquis, Sierra Suite I.
The PCRN SIG is a forum for PAS members who either are involved in or are planning to establish clinical research networks (defined as enduring multi-site clinical research collaborations). Representatives of a diverse group of primary care (PBRNs), specialist, and disease-specific networks meet to discuss common challenges and potential solutions to those challenges, offer consultation to those planning or launching new networks, and hear other news on topics of interest to network researchers.
This meeting will feature presentations on two new networks. Drs Christine Turley of the University of South Carolina, Robert Annett of the University of Mississippi and Paul Darden of the University of Oklahoma will present on the IDeA States Pediatric Clinical Trials Network (ISPCTN) network . Dr Christina Olson of Children's Hospital Colorado will present on the Standardized Pediatric Research on Outcomes and Utilization of TeleHealth (SPROUT) network. After each presentation, attendees will offer consultation to the presenters on starting and building research networks.
In addition, we will have sessions on:
- Using a single IRB for multi-centered trials:
- Rachel Sak, RN, MPH, Elena Hoskin, MPH CCRA and Nate Buscher will present UCSF’s Biomedical Research Acceleration, Integration, and Development (BRIAD) program
- They will be joined by John Finkelstein, MD of Boston Children’s Hospital in a discussion about implementing this new rule.
- Internetwork collaborations featuring :
- Karen Wilson, MD of Pediatric Research in Inpatient Settings (PRIS)
- Iman Shariff, MD of Continuity Research Network (CORNET)
- Richard Ruddy, MD of Pediatric Emergency Care Applied Research Network (PECARN)
- Alex Fiks, MD of Pediatric Research in Office setting (PROS) and Pediatric Research Consortium (PeRC)
- C. Jason Wang, MD, PhD of PCHA-UHA Primary Care Physician Network
We look forward to seeing network researchers from both new and experienced networks on the morning of May 6th. We will send an APA Listserv reminder in mid-late April.
Alex Fiks, MD and Richard Ruddy, MD
PCRN SIG Co-Chairs
Previous Newsletters
Current SIG Chair:
Alexander Fiks, MD
34th Street & Civic Center Blvd
Philadelphia, PA 19104
Phone: (267) 426-2304
Fiks@email.chop.edu
