Patient and Family Centered Care SIG

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The Patient and Family Centered-Care Special Interest Group is dedicated to help individuals and programs to provide high quality patient and family centered care by, providing a forum to exchange our collective experiences, ideas and lessons learned to further advance the field of Patient and Family Centered Care and fostering efforts in collaboration, education, quality improvement and research.

The vision of the special interest group of patient and family centered care is to facilitate full implementation of the Patient and Family Center Care into our daily practice by promoting an active collaboration of health care providers that innovates, continually improves, and advances the field of patient and family centered care in pediatrics.

Annual Report July 2017

Alisa Khan, MD, MPH, Boston Children’s Hospital
Lisa Benz, MD, Cincinnati Children’s Hospital Medical Center
Arti Desai, MD, MSPH, Seattle Children’s Hospital

SIG purpose/mission:
To support individuals and programs who want to innovate, continually improve, and advance the field of patient and family centered care through education, QI, and research.

Current SIG goals:

  1. Hold a session at PAS on topic of interest to the SIG to facilitate networking and collaboration for PFCC SIG members and others interested in PFCC
  2. Engage SIG members throughout the year with ongoing and new national and local PFCC initiatives

Annual summary:
We had a great session at the annual PAS conference in conjunction with the Hospital Medicine SIG. Our session, entitled “Engaging Patients and Families in Hospital Care” included an expert panel, Q&A, and small group breakout sessions. The expert panel began with an introduction to family centered care in the inpatient setting led by Dr. Mary Ottolini, followed by parent perspectives on family engagement led by parent advisor Michele Ashland. We subsequently had presentations followed by Q&A and small group breakout sessions on engaging families in: 1) family-centered rounds (presented by Dr. Christopher Landrigan), 2) hospital safety (presented by Dr. Alisa Khan), 3) technology (presented by Dr. Jonathan Hron), and 4) transitions of care (presented by Dr. Joanna Leyenaar). The session was attended by nearly 40 people.

Other groups:

  • Institute for patient and family-centered care
  • Beryl Institute

Mark your calendars for the PFCC SIG workshop at PAS 2018 - Sunday, May 6th from 8-11 am!

Our PFCC SIG is partnering with the Health Care Value SIG for what we hope will be a thought-provoking, educational session entitled "Family-Centered Communication around Health Care Value."

Our interactive session will provide an understanding of the impact of direct and indirect costs of medical care on our families, how to navigate cost discussions with families, and explore the intersection (and at times perceived incongruence) of family-centered and cost-effective care. We’ll explore the following questions:

- Why is high value care important, and is it important to families?
- What is financial toxicity?
- What research is currently being conducted to address the intersection of high value care and family-centered care?
- How is high value care complimentary or at odds with family "satisfaction" with care?
- Who benefits from high value care?

Stories solicited from trainees and families will provide true-to-life examples of how these concepts come together, with the session ending in a panel discussion on how to have productive, meaningful conversations about high value care with families. We have a great panel of experts, including parents and providers, and we look forward to seeing you there!

Toolkit High Value Communication with Families PASSession v.4_22_181

2018 Value of Stories Top10

Current SIG Co-Chairs:

Lisa Benz, MD
3333 Burnet Ave MLC3024
Cincinnati, OH 45229
Phone: (513) 636-6544

Arti Desai, MD, MSPH
2001 Eighth Avenue
Seattle, WA 98121
Phone: (206) 884-1497

Rebecca Rosenberg, MD, MPH
530 First Ave
New York, NY 10016
Phone: (212) 263-0959

Current SIG Mentor:

Nancy Spector, MD
635 Sussex Road
Wynnewood, PA 19096
Phone: (215) -76-2525




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