Patient and Family Centered Care SIG

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Mission:
The Patient and Family Centered-Care Special Interest Group is dedicated to help individuals and programs to provide high quality patient and family centered care by , providing a forum to exchange our collective experiences, ideas and lessons learned to further advance the field of Patient and Family Centered Care and fostering efforts in collaboration, education, quality improvement and research.

Vision:
The vision of the special interest group of patient and family centered care is to facilitate full implementation of the Patient and Family Center Care into our daily practice by promoting an active collaboration of health care providers that innovates, continually improves, and advances the field of patient and family centered care in pediatrics.




Please join us at PAS 2018 in Toronto (May 5-8th, 2018)!

We are excited to announce that our PFCC SIG is partnering with the Health Care Value SIG this year for what we hope will be a thought-provoking, educational session entitled “Family-Centered Communication around Health Care Value.

Our interactive session will discuss the importance of understanding impact of cost of medical care on our families and explore the intersection (and at times perceived incongruence) of family centered and cost-efficient care:

- Why is high value care important?
- What is financial toxicity?
- What research is currently being done to address the intersection of high value care and family centered care?
- Is high value care synonymous with “satisfaction” with care?
- Who is high value care satisfying?

Stories solicited from trainees and families will provide true-to-life examples of how these concepts come together, with the session ending in a panel discussion on how to have productive, meaningful conversations about cost with families. Be sure to encourage your trainees to submit stories- details are below!

We’ll see you there!

Lisa, Arti, and Alisa



Annual Report July 2017


Co-chairs:
Alisa Khan, MD, MPH, Boston Children’s Hospital
Lisa Benz, MD, Cincinnati Children’s Hospital Medical Center
Arti Desai, MD, MSPH, Seattle Children’s Hospital

SIG purpose/mission:
To support individuals and programs who want to innovate, continually improve, and advance the field of patient and family centered care through education, QI, and research.

Current SIG goals:

  1. Hold a session at PAS on topic of interest to the SIG to facilitate networking and collaboration for PFCC SIG members and others interested in PFCC
  2. Engage SIG members throughout the year with ongoing and new national and local PFCC initiatives

Annual summary:
We had a great session at the annual PAS conference in conjunction with the Hospital Medicine SIG. Our session, entitled “Engaging Patients and Families in Hospital Care” included an expert panel, Q&A, and small group breakout sessions. The expert panel began with an introduction to family centered care in the inpatient setting led by Dr. Mary Ottolini, followed by parent perspectives on family engagement led by parent advisor Michele Ashland. We subsequently had presentations followed by Q&A and small group breakout sessions on engaging families in: 1) family-centered rounds (presented by Dr. Christopher Landrigan), 2) hospital safety (presented by Dr. Alisa Khan), 3) technology (presented by Dr. Jonathan Hron), and 4) transitions of care (presented by Dr. Joanna Leyenaar). The session was attended by nearly 40 people.

Other groups:

  • PCORI
  • Institute for patient and family-centered care
  • Beryl Institute



Third Annual “Value of Stories” Session/Contest: Family Perspectives on Value

Over the past two years, the Healthcare Value Special Interest Group (SIG) of the Academic Pediatric Association has hosted a “Value of Stories” session at the Pediatric Academic Societies National Meeting. Stories can play an important and powerful role in shaping healthcare culture and delivery. In 2016, we solicited submissions from trainees detailing stories of low-value care. In 2017, we solicited high value care stories. We had many high quality, thoughtful submissions from trainees and the sessions were productive and memorable.

This year, we are partnering with the Patient and Family Centered Care SIG to focus on family perspectives on costs and value. Although efforts to better connect physicians and families with the costs of healthcare have been proposed as a means to reduce waste and improve value, there is a paucity of data surrounding whether and when families want to engage in discussions about cost. Similarly, little is known about the impact that health care bills have on the families of our pediatric patients, particularly our complex ones.

We are interested in stories from trainees (students, residents, fellows) that detail the impact that healthcare costs have had on families. In 400 words or less, please describe:

  • Brief details of your patient’s illness/story
  • How the costs of medical care have impacted your patient and his or her family
    • These can include direct costs (i.e. medical bills) or indirect costs (missed work, lost job, travel, daycare for other children, etc)
    • If applicable, discuss any associations between the costs of medical care and the patient’s health (e.g. a medication or intervention were deferred because of affordability)
  • What actions were taken/are being taken to remedy the situation

We encourage trainees to interview families directly about some of these issues when appropriate. Video/audio recordings of snippets of interviews are welcome (and will not count towards the word count max), with the family’s consent, of course. Please submit your story by e-mail to Alan Schroeder, MD (aschroe@stanford.edu) with “Value of Stories” in the subject line no later than February 1, 2018. The stories will be reviewed by co-chairs of the two SIGs and high scoring stories will be selected for oral presentation during our session. The meeting is in Toronto from 5/5 – 5/8/18, but the exact date of our session is still TBD. Final decisions will be sent no later than 3/1/18.



Current SIG Co-Chairs:


Lisa Benz, MD
3333 Burnet Ave MLC3024
Cincinnati, OH 45229
Phone: (513) 636-6544
lisa.benz@cchmc.org

Arti Desai, MD, MSPH
2001 Eighth Avenue
Seattle, WA 98121
Phone: (206) 884-1497
arti.desai@seattlechildrens.org

Alisa Khan, MD, MPH
21 Autumn St, Rm 200.2
Boston, MA 02215
Phone: (617) -35-2565
alisa.khan@childrens.harvard.edu


Current SIG Mentor:


Nancy Spector, MD
635 Sussex Road
Wynnewood, PA 19096
Phone: (215) -76-2525
Nancy.Spector@DrexelMed.edu


 

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